Hi, My name is Molly and I have CVID.

Hello to all of those who have come to see what this page is all about. I am a beginner blogger and this is a big project for me. I hope that I can get to know others that are dealing with this disease and other PIDs.  I have CVID, Common Variable Immunodeficiency Disease, class 1A.  Common it is not, but Variable, yes. I was diagnosed when I was 47 years old. I struggled with this disease since I was a baby. It took many years and many doctors to finally find what was happening to me and since it did take so long, it had gone through many of my bodily systems and have affected them. By the time they figured it all out, I was critically ill, had 5 lung diseases, congestive heart failure, bone disease and many others we won't go into now. Awareness of PIDs is a very important focus of mine as you can imagine. The faster it is found and treated, the less time it has to affect your body. Genetics is what this disease is all about. I have spoken to people in their 50s that had just been diagnosed but are not as ill as I am. It depends on your genetics as to how the CVID affects your body. Anyway, these are all things that can be discussed later. For right now, I just wanted to get a post up and also see if there are others that would like to answer back.  Have you just been diagnosed and want answers and/or support?  How do you deal with your everyday life? Are you on IVIG or sub q?  How are the side effects of your IG treatments going? Do you see improvements? When were you diagnosed? And for anyone that just wants to bitch, that's ok too. I know those days well, and encourage open bitchyness. ;-)  It's a part of living with this that we are used to smiling and saying we are 'fine' when really, we are not, when it's so complicated, you know their eyes will glaze over if you tell them how it is you're Really doing. Anyway, hello, my name is Molly, and I have CVID. How are you...Really?!